Palliative Care in Amyotrophic Lateral Sclerosis: From Diagnosis to BereavementUpplaga 2

Both the multidisciplinary palliative care team and the neurology team are essential in providing a high standard of care and allowing quality of life (both patient and carer) to be maintained. Clear guidelines are provided to address care throughout the disease process. Control of symptoms is covered alongside the psychosocial care of patients and their families, culminating in a discussion of bereavement. The experience of patients and families are considered and case studies are provided to show the practical application of the theoretical knowledge. Different models of care are explored, and this new edition utilises the increase in both the evidence base and available literature on the subject. Additional chapters on nursing, spiritual care, decision making, and ethical issues surrounding end of life care ensure that this new edition remains the essential guide to palliative care in ALS. This is a practical book to be used in the day-to-day care of patients with ALS. It will therefore appeal to all members of the multidisciplinary palliative care team, and neurologists dealing primarily with the management of the disease. It will also prove an invaluable reference for family doctors supporting an ALS patient.